CP State is collaborating with New York Disability Advocates (NYDA) and Syracuse University on an ongoing project to collect and analyze weekly COVID-19 data from voluntary I/DD providers, including all Cerebral Palsy of NYS Affiliates throughout the state. This data helps inform our understanding of the risks of COVID-19 for people with I/DD, strengthen our pandemic response, and support our advocacy efforts.
Most recently, the data was used in the Framework for The Equitable Allocation of COVID-19 Vaccine by the National Academies of Sciences, Engineering and Medicine. The I/DD population and the NYDA studies are discussed on pages 120-126.
The published studies, along with media and academic coverage citing the project, can be found below.
SYRACUSE UNIVERSITY PAPERS
COVID-19 outcomes among people with intellectual and developmental disability living in residential group homes in New York State
Published in Science Direct Disability and Health Journal – June 2020
COVID-19 Trends Among Adults with Intellectual and Developmental Disabilities (IDD) Living in Residential Group Homes in New York State through July 10, 2020
Published by the Lerner Center for Public Health Promotion – September 16, 2020
MEDIA AND ACADEMIC COVERAGE
COVID-19 and People with I/DD Final Report
U.S. Department of Health and Human Services
Framework for The Equitable Allocation of COVID-19 Vaccine
National Academies of Sciences, Engineering and Medicine (book, pages 120, 126) – November 2020
Developmental Disabilities Heighten Risk of Covid Death
New York Times – November 10, 2020
A Crisis Decades in the Making: Disability Housing Policy and COVID-19
Harvard Political Review – October 11, 2020
COVID-19 may be deadlier for group-home residents
Spectrum News – July 23, 2020
Group Home Residents With Developmental Disabilities More Likely To Die From COVID-19
Disability Scoop – July 13, 2020
Study: People with IDD living in residential group homes more likely to die from COVID-19
News Medical – June 25, 2020
People With Developmental Disabilities at Higher Risk for COVID-19
The Mighty – June 9, 2020
Benefits, Burden, and COVID-19: A Response to Dutheil et al. (2020)
Journal of Autism and Developmental Disorders – October 2020
Exploring the experiences of siblings of adults with intellectual/developmental disabilities during the COVID‐19 pandemic
Journal of Intellectual Disability Research – October 2020
ADA 30 and beyond: The urgent need for intersectional research
Disability and Health Journal – October 2020
Social inequities in the distribution of COVID-19: An intra-categorical analysis of people with disabilities in the U.S.
Disability and Health Journal – September 2020