Legislative priorities call for investment in NY’s Care Economy

CP State and its partners in New York Disability Advocates have released 2022 Legislative Priorities. Focused on the workforce crisis, they call for an investment in New York’s care economy.


COLA – Projected to be 5.4% for FY 2023

Following a decade of provider agencies not receiving the statutory required cost of living adjustment (COLA), the significant fiscal impacts of COVID-19 and the current level of inflation, agencies have experienced significant cost drivers that necessitate the full 5.4% COLA, as provided for in the July 2021 CPI-U report.
Agencies have seen significant cost increases related to mandated fringe benefits, repairs and maintenance, utilities, food, supplies, transportation an

d insurance over the past 12 months which has resulted in significant financial pressure on agencies. Additionally, since the I/DD provider agencies are solely funded by Medicaid funding, agencies are unable to increase the cost of services to compensate for increased costs of operations. This has also directly led to provider agencies inability to invest in workforce wages for direct care workers, which has resulted in wage stagnation for the past decade.

Workforce Funding

Continued investment in DSPs’ salaries is vital to the ability of the field to recruit and retain staff, and for future viability of the field.
As proposed as part of the OPWDD eFMAP plan, direct care CFR Title Code 200 series staff will receive a 20% increase. It is critical to maintain and expand 20% wage enhancements to continue these significant efforts. To bolster this significant investment, we recommend the following actions:

• Expand to CFR Title Code 100 and 300 Series Frontline Workers.
• Secure a commitment to continued funding of the 20% wage enhancement to prevent a fiscal cliff.

Recruitment and Retention

In addition to increased wages for staff, the following strategies as put forth by NYDA through the Workforce White Paper and by provider associations have been identified as priorities for inclusion:
• Establishing a Personal Income Tax Credit for Direct Care Staff
o This would be a $2,500 – $5,000 refundable personal income tax credit for employees providing direct care to individuals with I/DD, employed by a not-for-profit provider
agency and would be phased out on individuals with AGI in excess of $50,000 and would be limited to those with AGI under $100,000.
• Implementation of Statewide Recruitment Programs
o Expansion of the current BOCES and Community College Programs Statewide to facilitate employment in the direct care field.
• Implementation of Credential and Career Ladder Programs
o Credential Program – Advance language in the SFY 2023 Budget to implement a statewide standardized DSP credential program and continue funding to provide wage enhancements for DSPs, which will build upon the $20 million eFMAP proposal put forth by OPWDD.
o Career Ladder – Advance language in the SFY 2023 Budget to establish a career ladder program, which will provide a pathway to an associate’s degree in the human services field for current DSPs.
• State of New York Advocacy for Federal Direct Support Professionals Standard Occupational Classification
• The Arc New York’s Regulatory Reform Proposals

Rate Reform

Currently, OPWDD is in the midst of developing a new rate methodology, which will have significant implications for voluntary provider agencies for years to come. Through this process, agencies have been engaging with OPWDD and other stakeholders on the technical aspects of the rate redesign. However, provider agencies have expressed significant concern around the potential outcome of the final rate methodology, which may result in significant losses for provider agencies statewide for years to come.
Specifically, concerns have been raised that due to the rate methodology change, agencies that have invested in direct care wages will be penalized due to the proposed regional cost approach that is currently being contemplated. Given the workforce emergency that exists in the field, this is a major concern and could result in irreparable harm. We ask that the rate reform process recognize the significant challenge providers are facing and that the new methodology not contain any component that would remove or negate any investment the legislature or providers have made in the workforce.
Additionally, concerns have been raised about the ability for the CAS to predict enhanced staffing needs based on the lack of ability to identify the intensity of service needs for individuals, resulting in individuals being classified into lower tier classifications.
While this process is still evolving and we are committed to working collaboratively with OPWDD and the State to develop a methodology that provides fair and equitable rates for years to come, we do wish to express our concerns at the current juncture.


Send the Governor a Workforce Crisis Letter & Rise Up Together!

Tell your Story! Rise Up Together to Address the DSP Workforce Crisis!

Watch this message from self-advocate BJ Stasio and then click HERE to send a letter to Governor Hochul!

NYDA_RiseUp_VideoCut.mp4 from Philip Aydinian on Vimeo.

The letters will be printed out, in addition to being emailed, and personally delivered to the Governor by BJ.

Join BJ and Rise Up Together to meet with Governor Hochul and present her with 10,000 letters/stories to discuss our workforce crisis.

CP of NYS Clinical Conference NOW VIRTUAL ONLY

The CP of NYS Clinical Conference is changing to VIRTUAL ONLY. 

Click here for the updated brochure and registration information.

Although CP of NYS was requiring all in-person attendees to be vaccinated, we heard from many clinicians that they would only participate virtually.   This response led to our decision that it would be best to hold a virtual-attendance only conference for this year.


Virtual links will be sent to the email address provided in your registration in advance of the conference date.   

If you have any questions, please contact Angela Anderson at or 518-436-178.

We appreciate your understanding of our need to make this change, and we look forward to seeing everyone at the Virtual Clinical Conference!

Please share with your networks and anyone that might be interested in attending.

CEO Susan Constantino fights for DSPs at workforce hearing

Susan Constantino, CEO of CP Unlimited and President and CEO of CP of NYS, joined other executives, advocates, DSPs, and individuals with I/DD at a public hearing to evaluate the current workforce challenges of the I/DD service delivery system on Tuesday, September 14.

“What has the impact of our workforce crisis been on the people we support? Less staff who know and can provide the highest quality care/support to meet people’s unique needs. Higher turnover, causing lack of continuity in care and supports, thereby potentially decreasing the quality of care we offer. Fewer homes and programs available to support growing numbers of people and their families in need,” Constantino said to Senator John Mannion and members of the Senate Standing Committee on Disabilities.

A recent survey by New York Disability Advocates found that nearly 74% of DSP provider agencies experienced a higher vacancy rate than before the pandemic. Nearly half of surveyed agencies reported that they had to close programs or reduce operations due to staffing shortages. Unfortunately, without adequate funding provider agencies cannot provide wages competitive with sectors such as food service and retail to entice new workers.

The DSP workforce emergency affects continuity and consistency in the lives of the people being served. DSP workforce instability also affects provider agencies, as they struggle to maintain an adequate workforce and living wage for the 97,000 DSPs and ensure positive outcomes for the I/DD individuals to whom they provide critical supports and services.

Twenty people delivered testimony to the Senate Committee, including Jeff Paterson, Executive Director of CP Affiliate Empower in Western New York, and several of CP’s other partners in NYDA.  However, Constantino’s affiliation with CP Unlimited and CP of NYS gives her the unique perspective of seeing the ever-increasing workforce crisis through the focused lens of a direct service provider as well as the global view of a statewide advocacy association.

“My perspective is that of both a provider but also from our Affiliates’ collective experience in different locations across the State during the ever-increasing workforce crisis,” she said, noting that CP Unlimited offers residential, day, clinic, and other programs in and around NYC and employs more than 2,500 people. CP Affiliates statewide support almost 100,000 people with disabilities and their families and employ more than 19,000 people.

“It’s important to recognize that without a workforce the supports and services critical to people with I/DD don’t happen. People are not able to get up in the morning, bathe, eat meals, make doctor appointments, go to work – all the activities of daily living they might need assistance with don’t happen,” she said. “Families that were able to go to work because the supports were there are unable to go to work when those staff don’t show or aren’t there. And we, as a society, lose out because we’ve failed to ensure that the quality of life of those in need has been maintained – in fact, without a workforce and investment in workforce, we’re making a decision to discount the needs of people with I/DD across the State.  And we can’t let that happen.”

Constantino lambasted the State for moving forward with its plans to implement a cut of $238 million from providers for vacancy factor calculations.

“This is absolutely unconscionable and unnecessary,” she said. “Our providers must maintain operations of their homes even when the residents are home for visits with family, on vacation, or in the hospital or other health care facility. Suggesting that there’s something wrong with essentially keeping the lights on at the person’s home while they’re away demonstrates either a complete lack of understanding of the operations of these homes or perhaps something more punitive in motivation – either way, these cuts make no sense.”

Constantino ended on a note of partnership and optimism, offering solutions to the workforce crisis such as tax credits, career ladders for direct support professionals, and investment in the I/DD workforce to reach a living wage. She asked the State to be a partner in ensuring our workforce is valued and recognized for the critical role they play in so many people’s lives across New York State.

“We are looking for help in righting the ship – reestablishing the connection with the State to ensure our workforce’s efforts are prioritized and recognized,” she said. “We need a living wage – which means enough money from working one job with regular hours to support the housing, food, transportation and other fundamental needs of our workforce.  Any shortfall in that goal will not work.”

Remembering longtime advocate and friend, Duane Schielke

On August 31, the world lost a tireless advocate for people with disabilities when our friend and colleague Duane Schielke passed away unexpectedly.

Duane was a selfless man and truly lived his life in the service of others. Following duty as an Army Field Artillery Section Chief in South Vietnam in 1973, he began working as a direct care counselor in a residence for people with disabilities while studying rehabilitation therapy and psychology at SUNY Buffalo. Duane then worked his way up to the position of Executive Director of the organization that would come to be known as Aspire of Western New York.

After a long and storied career at Aspire, Duane became the Executive Vice President, Chief of Development and Quality Management of CP of NYS, overseeing the growth of programs, services and new facilities, quality management activities, staff development and training, community support services and volunteer services.

Duane devoted his entire professional life to promoting and encouraging individuals with disabilities to live the most fulfilled and productive lives possible. He served on numerous government task forces, councils and commissions of the NYS Department of Health, Developmental Disabilities Planning Council and OPWDD. Commendations include CP of NYS’s Daniel Wieder Award for Professional Leadership (1995), and the Inaugural Niagara County Community College Distinguished Alumni Award in 1988. He is the co-author of “The Triple Stress Jeopardy of Agent Orange Class Members” in The Legacy of Vietnam and Their Families, Survivors of War: Catalysts for Change, 1995.

“Duane was unique in so many ways, always pushing himself and others to reinvent disability supports and services,” said Mike Alvaro, Executive Director of CP of NYS. “His vision and efforts were far reaching, improving the lives of so many people in the state. His passion, his insights, and his smile will be missed by all who had the honor of knowing him.”

“The I/DD community has lost a true champion in Duane Schielke,” said Susan Constantino, President and CEO of CP of NYS. “No matter what area of the disabilities field, Duane would always be there to get the job done. He was a valued member of my team, a true advocate, and a dear friend. Life without Duane will certainly be different, and he will be missed.”

Services will be held at: Sherri Bream, Funeral Home, 4521 Main Street, Gasport, New York 14067

The wake will take place Thursday, Sept. 9, 4-7 p.m.  The funeral will be Friday, Sept 10, 1 p.m. with a reception immediately following.

The family has requested that in lieu of flowers donations be made in Duane’s memory to:

United Cerebral Palsy Associations of NYS

40 Rector St., 15th Floor

New York, NY 10006

There will be a memorial service for Duane at the end of September, date, time and location to be determined.

DOH: Hospitals and long-term-care facilities will require employees to get vaxxed

Please note that CP State is seeking clarification on how this may impact our field now that this step has been taken.

Department of Health Issues Section 16 Orders to Hospitals and Long-Term Care Facilities Requiring Policy to Ensure All Employees Are Vaccinated

First Dose Required by September 27

Department of Health Authorizes Third Dose for Immunocompromised New Yorkers

Governor Andrew M. Cuomo announced recently that all healthcare workers in New York State, including staff at hospitals and long-term care facilities (LTCF), including nursing homes, adult care, and other congregate care settings, will be required to be vaccinated against COVID-19 by Monday, September 27. The State Department of Health will issue Section 16 Orders requiring all hospital, LTCF, and nursing homes to develop and implement a policy mandating employee vaccinations, with limited exceptions for those with religious or medical reasons. To date, 75% of the state’s ~450,000 hospital workers, 74% of the state’s ~30,000 adult care facility workers, and 68% of the state’s ~145,500 nursing home workers have completed their vaccine series. Lt. Governor Kathy Hochul’s administration was briefed prior to the announcement.

“When COVID ambushed New York last year, New Yorkers acted, while the Federal Government denied the problem,” Governor Cuomo said. “Now, the Delta variant is spreading across the nation and across New York — new daily positives are up over 1000% over the last six weeks, and over 80 percent of recent positives in New York State are linked to the Delta variant. We must now act again to stop the spread. Our healthcare heroes led the battle against the virus, and now we need them to lead the battle between the variant and the vaccine. We have always followed the science, and we’re doing so again today, with these recommendations by Dr. Zucker and federal and state health experts. But we need to do more. I have strongly urged private businesses to implement vaccinated-only admission policies, and school districts to mandate vaccinations for teachers. Neither will occur without the state legally mandating the actions — private businesses will not enforce a vaccine mandate unless it’s the law, and local school districts will be hesitant to make these challenging decisions without legal direction.”

Governor Cuomo also announced that the Department of Health has authorized a third COVID-19 vaccine dose for New Yorkers with compromised immune systems, following the Centers for Disease Control and Prevention’s recommendation last week. Eligible New Yorkers can receive their third dose 28 days after the completion of their two-dose vaccine series, effective immediately.

The CDC is currently recommending that moderately to severely immunocompromised people receive an additional dose, including people who have:

  • Been receiving active cancer treatment for tumors or cancers of the blood;
  • Received an organ transplant and are taking medications to suppress the immune system;
  • Received a stem cell transplant within the last 2 years or are taking medicine to suppress the immune system;
  • Moderate or severe primary immunodeficiency (such as DiGeorge syndrome, Wiskott-Aldrich syndrome);
  • Advanced or untreated HIV infection;
  • Active treatment with high-dose corticosteroids, cancer chemotherapy that causes sever immunosuppression, or other medications that may suppress your immune response.

New Yorkers should contact their healthcare provider about whether getting an additional dose is appropriate for them at this time.

New York State Health Commissioner Dr. Howard Zucker said, “While we have made tremendous progress in getting New Yorkers vaccinated, this pandemic is far from over and more must be done. The data and science tell us that getting more people vaccinated as quickly as possible is the best way to keep people safe, prevent further mutations, and enable us to resume our daily routines. This mandate will both help close the vaccination gap and reduce the spread of the Delta variant. I want to thank all New York State’s healthcare workers for stepping up once again and showing our state that getting vaccinated is safe, easy, and most importantly, effective.”

These steps follow Governor Cuomo’s August 2 announcement that MTA and Port Authority employees working in New York facilities will be required to be vaccinated for COVID-19 by Labor Day, and his July 28 announcement that state employees and patient-facing employees in state-run hospitals will be required to get vaccinated for COVID-19 by Labor Day. State employees who choose to remain unvaccinated will be required to undergo weekly COVID testing.


Workforce crisis events draw hundreds

On Wednesday, members of New York Disability Advocates (NYDA), The Alliance of Long Island Agencies (ALIA), and The Long Island Advocacy Network for the Developmentally Disabled  (LIANDD) were joined by more than 300 Direct Support Professionals (DSPs), New York State legislators, self-advocates, parents and other stakeholders to address the state’s workforce crisis of Direct Service Professionals (DSPs) who provide critical life support and services to more than 140,000 individuals with intellectual and developmental disabilities (I/DD).

The event was attended by Senator Mario Mattera, Assemblymember Melissa Miller, Assemblymember Michael Montesano, Robert McGuire, Executive Director, Cerebral Palsy Assoc. of Nassau County, Walter W. Stockton, CEO, Independent Group Home Living Program, who raised awareness regarding the workforce crisis the I/DD sector is facing to identify solutions. Video of the event can be found at

“I believe strongly in providing quality care for New Yorkers with intellectual and developmental disabilities (I/DD) and gladly lend my support to Alliance of Long Island Agencies and its effort to solve this workforce crisis,” said Assembly member Charles D. Lavine.

“My son and I rely on the Direct Service Professionals at Cerebral Palsy of Nassau County for all of his daily needs, including feeding, bathing, and toileting. They provide essential, life-changing services for people with disabilities. New York State needs to fund a competitive wage for DSPs,” said Bob Masterson, a parent and former Direct Support Professional.

NYDA, ALIA, and LIANDD are calling on the state to address this crisis by establishing a living wage for DSPs, creating credit and career ladders for those going into the direct support field, and professionalizing the DSP role by creating a unique labor code and advanced training opportunities.

“Eleven years ago, New York State changed the name of the Office of Mental Retardation and Developmental Disabilities to the Office for People with Developmental Disabilities. Why? To erase the word ‘retardation’ out of the agency’s name, out of respect for those it serves.” said parent Terri Manzione. Yet in the 11 years since that name change, there has been a deterioration in the access to, the quality of, and the funding for the very humans that New York State claimed to be honoring with that name change. You cannot erase the history of this past dark decade and erase the mess we’re in today by simply ignoring it!”

The results of a recent survey conducted by New York Disability Advocates found that nearly 74% of DSP provider agencies experienced a higher vacancy rate than before the pandemic. Nearly half of surveyed agencies reported that they had to close programs or reduce operations due to staffing shortages. Unfortunately, without adequate funding provider agencies cannot provide wages competitive with sectors such as food service and retail to entice new workers.

The DSP workforce emergency affects continuity and consistency in the lives of the people being served. DSP workforce instability also affects provider agencies, as they struggle to maintain an adequate workforce and living wage for the 97,000 DSPs and ensure positive outcomes for the I/DD individuals to whom they provide critical supports and services.

Help people with disabilities be better understood

Project Euphonia is a Google Research project started two years ago with the goal of helping people with speech impairments communicate faster and gain independence. A few months ago, they reached a milestone of 1,000 hours of recordings from 1,000 participants! Their next goal? Collect speech samples from an additional 5,000 participants! For the type of research Project Euphonia is doing, having data from a large number of speakers representing a broad spectrum of speech characteristics helps the most. Learn how you can help – and maybe make some money recording speech samples for Project Euphonia – by visiting
DSPs and other staff can get paid for their time too!