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This session will discuss the impact of the COVID-19 pandemic on individuals with intellectual and developmental disabilities, how agencies and health centers faced the challenges on their own front lines, and how healthcare was provided and ensured throughout the pandemic and will be into the future. Scott Landes, a researcher from Syracuse University, will discuss results from data analysis of COVID-19 outcomes among adults with intellectual and developmental disabilities, including data provided by  CP State Affiliates and other agencies across New York. Dr. Vincent Siasoco and Dr. James Powell will discuss the issues they face and the opportunities that arose that led to the implementation of quality systems and programs from a distance to keep a very vulnerable population safe.


Scott Landes, PhD, Syracuse University

Dr. James Powell, CEO, Long Island Select Healthcare, Inc. (LISH)

Dr. Vincent Siasoco, CMO, Metro Community Health Centers (MCHC)

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We all want to advocate successfully and to be able to show that success to our supporters!

In addition to reviewing  the advocacy campaigns that CP State has conducted this year and currently has underway, this panel will look at public relations strategy surrounding an advocacy campaign, choosing the right tactics and setting objective goals for determining success. We’ll hear best practices from the viewpoints of elected officials, government-relations professionals, and advocacy and PR consultants.

We’ll also have the unique opportunity to hear about effective strategies on engaging elected officials from both sides of table, as we’re joined by Senator David Carlucci, Chairman of Committee on Mental Health and Developmental Disabilities,  and Evan Sullivan of Ostroff Associates.


 David Carlucci, Senator

Barbara Crosier, CP State Vice President of Government Relations

William DeVoe, CP State Director of Communications

Thomas Meara, Kivvit Public Relations

Evan Sullivan, Ostroff Associates

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Do not miss this opportunity to look at the critically acclaimed Netflix documentary “Crip Camp: A Disability Revolution” with the people closest to the subject!

The documentary looks at Camp Jened, a groundbreaking summer camp that galvanized a group of teens with disabilities to help build a movement, forging a new path toward greater equality

A panel of filmmakers, activists, and members of Camp Jened will share their thoughts about the challenges and successes of advocacy for the intellectual and developmental disability field.


 Judy Heumann 

John D. Kemp, President and CEO of The Viscardi Center

 Jim LeBrecht 

Click here for more information about the documentary.

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We are happy to bring you this unique experience, a live Zoom workshop for individuals with IDD from around the state. A New York City Ballet (NYCB) dancer and pianist will conduct a dance movement workshop based on a ballet from the Company’s vast repertoire.

You won’t want to miss this session!

If you’ve been lucky enough to see or participate in our NYS/NYCB workshops in the past, you know what a good time this is!

Presented by Meghan Gentile, Associate Director of Education at New York City Ballet, and Members of the NYC Ballet

Meghan Gentile has served as the Associate Director of Education at New York City Ballet (NYCB) since September 2016. In this position, Ms. Gentile has spearheaded the creation of NYCB’s Access Programs: a branch of the Education Department providing programming for children and adults with disabilities, both on campus at Lincoln Center, as well as off-site at medical centers and special education schools in the greater NYC area. Within the department, Ms. Gentile is also involved in the creation, implementation and assessment of NYCB’s in-school residency programs, as well as public programs for all audiences, including on-stage presentations, movement workshops, and lecture demonstrations. Ms. Gentile has served the New York City Ballet Education Department in various capacities since January 2008. She holds a B.A. in Dance from the State University of New York College at Potsdam and a M.A. in Dance Education from New York University, Steinhardt School of Culture, Education and Human Development.

Below is the link for this workshop.  You can share this with your staff and families, and they will be able to access this event from any safe and suitable site with a reliable internet connection.

 Topic: 10-28-20 NYC Ballet Workshop

Time: 10:30am to 12:00pm

Meeting ID: 933 9180 7182

Passcode: 063374

 To Join by Video:

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Affiliate appreciation is underway!

We’re excited to announce that the Affiliate appreciation videos have begun and will be posted every weekday until our Virtual Conference, October 26-29

We’ll post them below, but you can  also find them on CP State’s Facebook and Twitter accounts. Please like and share with your followers so they can see the wonderful work we’re doing throughout the state.

Upstate Cerebral Palsy

Upstate Cerebral Palsy of Long Island

The Center for Discovery

Queens Center for Progress



HCA of Southern New York

Happiness House



Gavras Center

CP Unlimited

CP Rochester

Wraparound Services of the Hudson Valley

CP Westchester

CP North Country

CP Nassau


Able 2


Access CNY



Center for Disability Services

ISS exemption from 20% withhold 

The Office for People with Developmental Disabilities (OPWDD) reported on their call with providers that certain payments for housing will be exempt from the 20% withhold. Such payments are included in Individual Supports and Services (ISS) contracts, Assistive Support Prices, and direct housing subsidies in self-directed budgets. 

 OPWDD indicated that payments made during the current quarter (July1, 2020 to September 30, 2020) of the State’s current fiscal year for invoices related to the ISS (ISS/Housing Subsidy) Program will not be subject to the 20% withhold, regardless of service date. This applies to housing subsidies that are directly available to individuals enrolled in the traditional ISS program and paid through an ISS contract or Assistive Support Price, as well as people who receive housing subsidies and self-direct their services.

Special designation needed

To ensure that a portion of these payments are not inadvertently withheld, OPWDD is requiring that any invoices, vouchers and claims for reimbursement of ISS/housing subsidies be specifically identified when they are submitted. Effective immediately, please include the term “ISS/housing subsidy” in the upper right-hand corner of any ISS/housing subsidy request for reimbursement. 

Payments that have already been made from which the 20% was withheld are currently being reviewed by OPWDD. You will be contacted if there is need for further information.

As a reminder, the 20% withhold continues to be applied to other state-only forms of reimbursement.

We will inform you of any additional requirements as they become available and will continue to work on a longer commitment. Kevin Valenchais and his staff, as well as others at OPWDD worked to get this accomplished for all the people who are living independently in the community and we are grateful for their effort.

Electronic Visit Verification resources

Electronic Visit Verification is required to be implemented as of January 1, 2021.  

Below are Q & A clarifications from NYS DOH.  These answers have not been formally released by NYS and are still “DRAFT” but they are expected to be released.

In addition to the questions below, OPWDD has said that remote services (day hab, com hab, and telehealth) do not require EVV.

 Q: If in home respite or com hab claims do not have complete EVV data after 1-1-2021,  would eMedNY deny the claim?”

A: NYS continues to build the EVV system that will encompass linked EVV data and payable claims.  At this time, a claim payment is not linked to complete EVV data submission for that claim.  NYSDOH reserves the right to conduct visit validation beginning 1/1/2021.

Q: Some Community Habilitation services are provided in the community. Is EVV still required if the services are not provided in the home?

A: Community Habilitation (CH) services are frequently provided in the community outside of the person’s home. A CH service claim would not require EVV reporting if the services being claimed are delivered entirely in the community. CH Services that are delivered entirely in the community are CH services that are not provided completely or partially in the home.  Please see EVV Applicable Billing Codes document for OPWDD CH rate codes that are impacted.

Q: Do Community Habilitation Remote (CH-R) services through OPWDD apply to EVV?

A:  CH-R services are subject to EVV if  they meet the following criteria:

  • Is considered a Medicaid Personal Care Service (PCS) as described above, in other words the staff provide ADL and or IADL supports
  • The services begin or end or are delivered entirely or partially in the person´s home
  • The services are not provided in a congregate facility

If the Group CH-R is delivered in a certified residence under the OPWDD Comprehensive HCBS Waiver, Appendix K, it is not subject to EVV. 

To learn more about OPWDD CH-R guidance, please review the EVV Program Guidelines and Requirements document.


List of billing codes that are subject to federal and state EVV requirements 

These are effective 1-1-2021 and includes OPWDD com hab, respite, HCBS TBI, CDPA, etc.

 Interface Control Document (ICD)

As discussed on recent Technical Assistance Calls, NYSOH is posting a draft Interface Control Document (ICD) for review and comment. The ICD describes the relationship between the Electronic Medicaid of New York (eMedNY) information system and EVV Submitters and specifies the requirements of both participating systems. This includes the concept of operations, the file structure and protocols that govern the interchange of data, and the communication paths along which the data is expected to flow. The ICD can be found here.

Comments can be sent to

 EVV Event Calendar

DOH will host a series of technical collaboration calls to assist with questions related to EVV implementation.

Ancor letter urging EVV implementation delay

Click here to read the letter to CMS/Seema Verma urging an EVV implementation delay from ANCOR, ACCSES & other national provider associations.

CP State Annual Art and Photo Contest

CP State will, once again, hold an art contest from which we will produce a commemorative poster. This year, more than ever, we believe it is important that we continue to offer opportunities for the people we support to express themselves through art.


Featuring Artwork by People with Disabilities from CP State Affiliates

We know that it may be more difficult for you this year, but we are asking that each Affiliate select and submit one piece of original artwork created by someone receiving services from your agency.  It must be submitted by the Affiliate. There is no minimum or maximum age. You may submit artwork by children or adults, but please submit just one piece of original artwork per Affiliate.

Please email a high-resolution (at least 240 dpi) picture of your Affiliate’s entry to Bill DeVoe at by September 14, using your Affiliate name and “Art Show” in the subject line. We will display the pieces in a virtual art gallery during our virtual conference October 26-28. A commemorative poster will be printed and sent to affiliates.

Please make sure that we have permission to publicly display the work and the artist’s name.  We ask that you obtain permission to use any of the art on our website or in some of our Conference-related materials. Click here top download the permission form. Please complete the form and send it with the artwork.


We will also conduct a photography exhibit. Make sure to submit work that we have permission to display publicly and on line A permission form is attached.

We would also like to have permission to use any photograph submitted in publications or online.

Please send us a digital version of the photo so that we may incorporate all the entries in the conference materials.

Contact me if you have any questions at (518) 478-4809 or

CP Unlimited welcomes two Columbia Grad School students for fellowship during COVID-19  pandemic

In June, CP Unlimited welcomed 2 students from Columbia University Graduate School of Business for the start of their Summer Fellowship Program.  Stephanie Lin and Li Wang met with CEO Susan Constantino and CFO Tom Mandelkow to share their interests in learning about the services we provide, and their hopes that their projects will provide useful analysis and information to CP Unlimited.

The Governing Board and Management of CP Unlimited would like to thank:

Bruce Usher, Co-Director of the Tamer Center for Social Enterprise; Elizabeth Strickler ’86 and Mark T. Gallogy ’86 Faculty Director &   Professor of Professional Practice at Columbia Business School for sponsoring the students and giving us the opportunity to host the fellows.

Our special thanks to Program Director Ivy Hatsengate for her advice and guidance.


Stephanie Lin’s educational background consists of a double major for Finance and Statistics at NYU. She also has just finished her first year of an MBA at Columbia Business School and will complete her degree May 2021. Her work experience involves 3 years at Deloitte as a data consultant.

Her interest in CP U is giving her new experiences in working with a non-profit entity, particularly specializing in data analytics. Her experience as an intern is definitely helping her become ready for the nonprofit world: a sphere she hopes to work in post-MBA.

Stephanie wrote:

My project is about measuring the ROI of telemedicine. For context, CPU engaged in a telemedicine project since late 2018, and now want to assess if the grant money used to fund it was put into good use.

What I want to learn is what needs to be considered when assessing a project in the nonprofit space. I am used to evaluating the value of things from a for-profit perspective, so this internship is definitely a great learning opportunity for me to understand how nonprofits assess differently.

I hope to bring to CPU my background in data analytics for financial consulting, as well as my first year of an MBA education.


Li Wang recently graduated from Columbia Business School with concentration in Finance and Healthcare Management. She received her bachelor’s degree in economics from Tsinghua University in China. Her focus on healthcare industry for 7 years in Tokyo, Japan involved working as a strategy analyst for Takeda Pharmaceuticals, then as a management consultant for Price Waterhouse Coopers.  Li has accumulated rich experience in business analytics and organizational transformation.

Her project in CPU will be looking at the impact at COVID-19 in an IDD setting. This will give her the experience in looking at the health care industry in US and understand the financial impact of COVID-19 to OPWDD service providers in New York State. She is looking forward to gaining practical skills in risk/crisis management.

Li Wrote:

I am trying to quantify the financial impact of COVID-19 pandemic on the revenues and costs at CP U, and develop forecast of the upcoming years and recommendations for higher operational efficiency.

This project is tremendously helpful for me to understand the services for IDD population, healthcare system in New York and the impact of COVID-19 on the economy and our society.

Hopefully, the project results will bring a bit more visibility of the operations for CP U and be helpful in preparation for any potential crisis.

NYDA hosting July 23 panel with Senator Gillibrand

Register by COB Monday, July 20, for this online panel discussion of our provider system and the proposed OPWDD cuts.
Since the beginning of the pandemic, Senator Gillibrand has leading voice for individuals with disabilities and the workforce that serves them. She fought for and secured an increase in the enhanced FMAP and for increases in HCBS waiver funding. 
Join Senator Gillibrand and NYDA members on Thursday, July 23, 11:30 a.m., for this very important discussion on the state of our field.